Adult life for individuals with Down syndrome

Recruiting
18 years - 100 years
All
Phase N/A
1 Location

Brief description of study

The purpose of this study is to explore the current experiences and quality of life for adults with Down syndrome as perceived by themselves, their family members, and direct support professionals.

Detailed description of study

The purpose of this study is to explore the current experiences and quality of life for adults with Down syndrome as perceived by themselves, their family members, and direct support professionals.
Participants will not be paid for their participation.

Eligibility of study

You may be eligible for this study if you meet the following criteria:

  • Conditions: Down syndrome
  • Age: 18 years - 100 years
  • Gender: All

Inclusion Criteria
The target population for this study will be adults with Down syndrome, their family members, and direct support professionals who work with adults with Down syndrome.
identified with Down syndrome
willing and able to participate in a focus group and in-home interview
family members of an adult with Down syndrome
caregivers who work regularly with adults with Down syndrome
Exclusion Criteria
Individuals who are nonverbal

Updated on 04 Aug 2024. Study ID: 1802262588

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